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It Shouldn't Be This Way: The Failure of Long-Term Care, by Robert L. Kane M.D., Joan C. West
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The failure of long-term care is the country's best-kept embarrassing secret. Almost every adult in the United States will either enter a nursing home or have to deal with a parent or other relative who does. Studies show that 40 percent of all adults who live to age sixty-five will enter a nursing home before they die, while even more will use another form of long-term care.
Part memoir, part practical guide, part prescription for change, It Shouldn't Be This Way is a unique look at the problems of long-term care. Robert L. Kane, a highly experienced physician and gerontologist, and his sister, Joan C. West, tell the painful story of what happened to their mother after she suffered a debilitating stroke and spent the last years of her life in rehabilitation, assisted-living facilities, and finally a nursing home. Along the way, her adult children encountered some professionals who were kind and considerate but also many frustrations—inadequate care and the need to hire private duty aides, as well as poor communication and lack of coordination throughout the system. The situation, they found, proved far more difficult than it needed to be.
As the authors recount their mother's story, they impart various lessons they learned from each phase of the experience. They alert those who are confronting such situations for the first time about what they will likely face and how to approach the problems. Closing with a broader look at why long-term care is the way it is, they propose steps to make necessary reforms, including the development of national organizations to work for change. Their message to families, care professionals, and policy-makers could not be more urgent.
- Sales Rank: #458919 in Books
- Brand: Brand: Vanderbilt University Press
- Published on: 2005-05-16
- Original language: English
- Number of items: 1
- Dimensions: 8.50" h x .56" w x 5.46" l, .48 pounds
- Binding: Paperback
- 200 pages
- Used Book in Good Condition
Review
"A common sense book that is part memoir, part guidebook, and part call to arms."
—New York Times
From the Publisher
"An extraordinary blend of personal and professional vision on a problem that has both policy and spiritual dimensions. This book does what a support group does: tells you that you are not alone. It helps you interpret your experience, understand it, put words to it, and crystallize your understanding, both emotional and intellectual. "Many of the authors' insights will be useful to caregivers - especially those caring for elderly parents - who need to know:
- That hospitals have their own institutional needs at heart, not your parents'
- That discharge planners are not your friends
- How to evaluate nursing homes
- When and how to conduct discussions about DNR (do not resuscitate) wishes "These and other practical but crucial issues are dealt with in clear detail that will help people know how to act and talk when they are in similar situations. Beyond these practical things, Kane and West illuminate the emotional landscape of parental care - even harder issues to prepare for and to talk about. "It's a tremendously worthwhile book, with enormous potential value both to lay people and policy professionals." --Deborah Stone, Research Professor, Department of Government, Dartmouth College
About the Author
Robert L. Kane, M.D., holds an endowed chair in long-term care and aging at the Minnesota School of Public Health. The author or editor of more than twenty-five books and three hundred journal articles, he has analyzed long-term systems both in this country and abroad
Joan C. West, an educator for over thirty years, has been an elementary school classroom teacher, mentor, staff developer, and workshop leader. She is currently an adjunct professor at St. Joseph’s College in Patchogue, New York, where she supervises student teachers in their field placement. She was the principal caregiver for her mother during the episode described in this book.
Most helpful customer reviews
0 of 2 people found the following review helpful.
Great book for family members
By Tricia O'Donnell
My parents are just entering the phase of needing some kind of elder care. This book was a big help, since a geratric specialist was the co-author and son of the woman this book was about.
22 of 33 people found the following review helpful.
Unfair
By Kate Brookhouser
I work in a Long Term Care Facility. This book is extremely unfair to the staff who are trying their very best to provide a quality life for the elderly whose family are unable to provide care. The "mother' discussed by the authors is a very challenging individual. She has behaviors that do not respond to love and care. She is the type of person who causes staff to become burnt-out. And then it is so typical that as staff are attempting to provide a safe environment, family show up and complain about the situation. We do not "throw away" elder adults that are angry and abusive. Staff, including myself are in this job because we love older adults. We do not make much money. We could have gone into sales or technical fields and doubled our salaries. I am very proud of caregivers who spend their day changing diapers interspersed with giving hugs and reassurances to older adults who are lonely. There was not one nice thing said about staff in this book written by very angry family members who undoubtedly are feeling guilt over not being able to care for their mother at home.
11 of 11 people found the following review helpful.
Read This Book
By Catherine W. Morgan
This book should be mandatory reading for every healthcare professional and for all nursing students. It is excellent for anyone dealing with or who will deal with aging parents. I continue to buy copies and share with anyone I find enduring the journey through long term care. Our family has just finished our journey through the failed system. I have personally had 20 years experience as a nurse in long term care but nothing could have prepared us for the journey. Unfortunately nothing can take away the pain and suffering our father endured for those months in long term care facilities. However this book put in words many of out thoughts and much of what we experienced. I have read it several times and read it out loud to anyone present when we were trapped in similar circoumstances. Our journey was similar in many ways which is tragic. Everyone with parents still living should read this book. We must move together to make a difference and change this failed sytem.
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